Friday, September 07, 2007
Sleepy boys... little and big
I really owe you some sort of detailed explanation for the video clip I've linked towards the end of this post... but I'm too tired to type.
Truth be told, anyone who has been reading this journal for any length of time has probably caught some subtle allusions to the fact that our youngest son has some sensory issues. That statement really deserves a post (or 3) all its own, but for the purposes of context, the video I've posted here was taken last night at Hadassah's sleep clinic where I took Yonah for a sleeping EEG (Electroencephalogram).
What we don't know about Yonah could fill volumes. We know he is a bright, lovable, delicious little boy... who didn't speak at three, and craved certain sensory input while loathing others. Basically, we don't know exactly what's up with Yonah.
We have heard doctors and clinicians use an alphabet of acronyms... only to back away a few months later and toss out a few more letters. PDD? Aspergers? Autistic? Who the heck knows?
Last year he was in a special gan where he received a dizzying array of therapies and assistance and has made huge leaps towards catching up with his peers. He is back in the gan this year and is truly thriving... but our pediatrician still wants to figure out what is going on with him.
So last night Yonah and I packed an overnight bag and went to a sleep clinic in Jerusalem and had our own little slumber party... under the supervision of a half dozen technicians. I originally brought the camera to document the occasion for Zahava since they only allowed one parent to attend. But it turned out to be useful as a distraction. I mean, think about trying to wire up a kid with sensory issues with a dozen electrodes, a thing under his nose and a blood oxygen meter on his finger... and then getting him to go to sleep.
I think the only reason he let us do this was that he was too busy hamming it up for the camera to notice. I was so proud of how he handled this scary adventure... and well, you can see for yourself (if you are at work you might want to turn down the speakers... or close the door).
As I said earlier, this is really a topic that deserves a post of its own... and I imagine Zahava or I will probably write it one of these days. I think one of the reasons we haven't so far is that we're a little afraid of the comments we might get. Our little boy isn't sick in the conventional sense so wishes of 'I hope he gets better' are not really called for. He isn't retarded... in fact the doctors all agree he is smart as a whip.
Yonah just experiences the world around him a little bit differently than most of us... which offers some challenges as to how he will get along in it.
Tests like the one he had last night will hopefully help the professionals know what is - and isn't - wrong, and give us all the tools to help him grow up to live a normal, happy life. One thing that is for sure, though: He is a bubbly, friendly little boy who charms everyone he meets... and is the apple of his very tired father's eye.
Here's another link to the video in case you missed it above: CLICK HERE
Posted by David Bogner on September 7, 2007 | Permalink
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Awwwww. He's so sweet! Well, next week I'm going in for MY sleep study! My husband has been bugging me for years to do this. He tells me I gasp for air all through the night. I'm thinking sleep apnea...which my father has. Great. I'll probably have to sleep with a machine.
Anyway, I hope you get some good information on Yonah from this test....and some sleep for yourself! :D
Posted by: Maya | Sep 7, 2007 2:09:53 AM
We've done the overnight thing, too. Yonah is a beautiful child and I hope everything works out well. I will pray for him and for his beautiful family too. :)
Posted by: GradualDazzle | Sep 7, 2007 4:17:44 AM
The little man is such a charmer, and a night of father-son bonding is a good thing for the both of you. Now get some rest (after work, I mean).
Posted by: Bob | Sep 7, 2007 5:09:03 AM
Yonah is one of the sweetest, most lovable kids I've ever met!!
I hope the test proves worthwhile, since it sure sounds like an ordeal for all parties involved.
Shabbat Shalom to the entire family!
Posted by: tnspr569 | Sep 7, 2007 5:55:47 AM
I just watched that video; there should be a tissue-warning attached! Talk about a tear-jerker!
He's even more adorable now!
Posted by: tnspr569 | Sep 7, 2007 7:02:49 AM
I read with interest your (magnified) attempt to understand what makes your son tick. You and yours are presented with the Universal Parenting Challenge, only "writ large."
My missus, raised in New Mexican horse country, would probably say that Yonah has "an odd kick to his gallop," which phrase I like, as it makes no implication of handicap or illness where there might be none!
Maya: for sleep apnea problems, may I recommend the use of an Annoyatron? :o)
Posted by: wrymouth | Sep 7, 2007 8:06:55 AM
Gee, Trep, I figured out the problem almost immediately. Yonah always has Kenny Loggins playing in his head.
That being said though, this kid is seriously cute.
All the best to everyone for a great new year.
Posted by: dfb1968 | Sep 7, 2007 8:37:07 AM
OMG I can't believe how big he's gotten. Maybe we can get you out to our new neck of the woods sometime soon!
Posted by: rachel | Sep 7, 2007 1:10:34 PM
We were there a few months ago! Couldn't get my son to keep on the nose thing though. And fyi, the sticky stuff from the electrodes was absolutely IMPOSSIBLE to take off!!! He ended up having it on for over a week!
Hope that you find some answers soon. Hang in there and keep on doing what you're doing........he looks happy, and that's what's most important!
Posted by: EmahS | Sep 7, 2007 2:40:18 PM
How great that he let them put all the wires, etc. all over him. Hope you get some information, after all that.
He's a cutie. Tell him Auntie Val is proud of him.
Posted by: val | Sep 7, 2007 2:55:10 PM
Wow....you mean he actually SLEPT with all that stuff hooked up to him? I'm impressed!
Posted by: Lisa Zlotnick | Sep 7, 2007 7:38:47 PM
Haven't commented in awhile, but I've been reading avidly in Google Reader.
What a brave little guy! And Dad was pretty brave too. It must have been tough to see him all wired up.
As for your reluctance to share about your experience, I completely understand. however, I've found lately that the more open and honest I am about what's going on with my own health issues (also something with a stigma) the more I am attracting people to my site who are looking for answers and advice. Most folks have been pretty supportive, and I hope that your readership will be as well.
Posted by: Lisa | Sep 7, 2007 7:44:51 PM
From the Tanta of another little kiddle who sees the world a tad differently, thank you. Thank you, more than you could ever truly know.
Posted by: Shayna | Sep 7, 2007 11:13:44 PM
I am sure that you'll all figure it out together. Nothing wrong with seeing the world differently, in fact that often turns out to be an advantage.
Posted by: Jack | Sep 8, 2007 12:11:53 AM
Dang he's cute!
Posted by: Alice | Sep 9, 2007 4:21:53 AM
Oh, he is so precious! Wow, what a lot of wires and stuff they hooked him up to.
The Giving Tree in Hebrew - so cute!
Posted by: SaraK | Sep 10, 2007 6:07:00 PM